If you're happy and you know it.....

This is a day in my life..

Some friends get in touch and ask us to go out for Mexican and then cocktails after. I've never been a huge fan of Mexican food but I'm happy to go for a Mojito or more. Line 'em up is what I say! I'll pay for it through the night because alcohol means medication for spasms becomes useless which seems really unfair. I'll be up all night in some form of contorsion. But it'll be worth it, I think.

The cocktails are in a different place to the meal so I think I'll just check where the meal is to see if it's accessible etc. Shock, horror! It's in a basement. Of course it is. 

So I ring my friend and tell her I can't do the meal. She feels guilty and is so apologetic. She asks me to come and they'll pull me back up the stairs. Two in front and one trying to get my knees to bend. I remind her of the embarrassing situation not so long ago where I couldn't get up TWO steps and the palaver that caused. 

OK, OK she says. But please come for the cocktails. I'm there already, I say.

Having not been to the cocktail bar before and now on the rant for disabled access, even though I know this is unrealistic for some places, I decide to check it out.

OMG!!!! It's upstairs. By now I'm crying and making ridiculous comments like my life's crap and what's the point of a life like this to my partner. 

I know my friend feels bad and she says, next time I'll check where we're going and I'm so grateful some people think of me like that but it's not what I want. If there is somewhere people want to go but I can't then it shouldn't cause feelings of guilt. It's just how it is.

It's why I draw back a bit. It's a bit of self preservation. So to those who know me, please understand, I still love you!

There are times when you have to look at your life and realise just how lucky you are. I'll admit to not being very good at doing this but when I do, I 'm so grateful. My partner has to remind me to do it sometimes. 

Have you noticed at funerals, people go around saying that life's too short and we must stay closer and then you don't hear from them for months/years on end? Well, until the next funeral anyway. So, I'm stopping and taking stock of the things I'm blessed with at the moment.

Lilly hasn't been to school for the last few days of half term. She's got chickenpox - again. Apparently you can get it twice. She likes to sneak off with my phone occasionally to listen to music, youtube etc. She'll often leave 'presents' for me. This is what she left on my phone a couple of days ago. These things make me happy - and I know it!

Please get me to India and donate if you can xxxx