Tuesday, 12 February 2013

I'm pleased for you - really I am...

To the lady I've spoken to recently.....

I'm a live and let live kind of a person. My feelings are, if it's working for you and it's not hurting anybody else then do what you need to do.

Who am I to inflict my opinion on you?  Although I may have a strong one. I may wheel away or put the phone down and let rip about how I think it's wrong or a bad decision but I won't tar you with my point of view. Not unless you ask me and then it's all game!


So why do you think it's alright to to do it to me? Ask me questions about it in a balanced way but don't launch at me in a frenzied attack.

If MS therapies like Tysabri are working for you then all power to you. If other drugs like Avonex and Copaxone are working for you then I'm pleased for you - really I am.

However for me, none of these drugs have worked. Still I relapsed and although being on Tysabri has stopped my relapses, still I've got worse.

I just have difficulty accepting that my only future sees me declining.

So, don't criticise me for what I'm wanting to do. I don't question your 'acceptance' of the situation. If you were progressing in the way I am may be you would feel differently. As it is, MS has little if any effect on you at all. Good for you, aren't you lucky up there in your ivory tower. Welcome to the dark side of MS.

Now if you don't like my approach then quite frankly, you can f*** off. I don't really care.

Right then, back to the pancakes, it's Shrove Tuesday!!!




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