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I haven't
written a blog post for a while because I haven't been well to be honest.
It's
Sunday the 17th February and I've got a bit of a sore throat. No major thing at
all so I went to bed dosed up on the usual amount of Baclofen to try to reduce
the night time spasms.
At 2am I
came to feeling that I had a temperature, you know how you feel cold but hot
and it hurts when you touch your skin.
I know
what this means...
I try to
move and nothing, absolutely nothing. My body from the ribs down feels as if it
has been screwed to the bed. After the pain of continuous spasms begins to get
to me I look over at my other half who is sleeping nicely. I really don't want
to wake anybody up. So I keep trying to move. I can't even pull myself over on
to my side and the pain is getting worse.
So I lay
still and start to cry and yes, it's all about self pity. As the racked silent
sobs became more intense (I'm painting a picture here) my thoughts turn to what
happens if this is permanent? Thank God for the kids or a trip to Dignitas
would be on the cards (dramatic enough?).
Paul
becomes aware that I'm having a meltdown and asks whats wrong and I say -
please help me. I tell him I have a temperature and as we've been through this
a few times before he goes to get me some paracetamol and more Baclofen. It's a
real knack taking tablets when you are flat on your back.
Once I've
taken them he proceeds to massage all the solid muscles until my knees are
loose enough to bend, but he can only do this by pushing them from behind and
forcing the issue.
Feeling
slightly better I tried to get back to sleep as did he, but not for long. I was
awake again at about 4.30am and decided to just suffer until he got up at 6am.
We went
through the same procedure again and eventually he got me downstairs by me
sliding on my backside. A sight to behold.
I settled
in to a chair and there I stayed for 3 days.
Humiliation
central!
I have a
commode that I use at times like this where I really can't use my legs. The
only way I could get on it was for it to be brought right in front of me. One
of the older kids would pull me up and another would pull my feet until I was
in the right position. Then they would go out and my youngest would stay with
me pulling down my trousers. This is wrong on so many levels. Thank God it was
half term and they were all around.
I kept
apologising to them for being such a crap Mum but they won't hear any of it.
They're so lovely.
I hope
you weren't eating your dinner!
Thankfully
my sister took Lilly for a couple of days, her Grandad having to come up all
the way from London to get her, my Mum and sister then came for a bit. Don't
know what I'd have done without them.
I'm still
not great and the fatigue is sky high.
I was
going to put a picture of my commode on here but the kids weren't impressed. I
really can't see why..
Get me to
India ASAP!!!!
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