Errr....

Just that really, errr...

My mind is totally mush at the minute.

I've been without a scooter - disaster!

One of the tyres blew so Lilly and I had to limp on it to school as getting off and walking isn't an option. You wouldn't believe how difficult it is to get a scooter tyre. The local disability shop reckon it was an unusual size. This I believe was a load of rubbish, I mean it's not as if it's square. I managed to get one before they did but then we couldn't get the wheel off blah blah blah.

There is so much to do but the minute I sit down to concentrate on anything my mind just goes blank. People in the MS business call it cog fog and it's a PROPER nightmare. I can sit staring in to space for any amount of time, completely inanimate, simply reminding myself to look at the clock every now and then so I don't miss Lilly coming out of school.

My newest symptom now being welcomed to the family, back spasms.

Pain like you wouldn't believe and only on the left side of my back at the moment until the right side starts to feel left out. Over the last couple of nights they have been horrific and no amount of medication help. I just have to go to bed to lie flat. It offers slight relief.

Being on my feet and moving in anyway leads to a spasm and looking like I've got a poker you know where.

I'm being distracted by my oldest son as he's applying to join the Royal Navy. We are going through every sample test paper we can find, trying to get his speed up as the individual sections are timed. I hope it goes well, I can't wait to see him doing so many amazing things.

Anyhow, the fundraising is good. So many people getting involved up and down the country. I'm forever grateful.

There's a page on my website www.clairetoindia.co.uk which needs updating again now explaning all.

For your viewing pleasure, here's Carmel Turner talking about her HSCT procedure..

http://www.youtube.com/watch?v=FIIukhf4v3w

 Until next time xx