So it's very nearly over..
Last night I was let out of isolation and back on the ward.
The first thing we did when we got in to that room was throw open the window and take some really deep breaths. It felt so good to be free!
Over the last few days I've really noticed how down I was getting. Being confined to a 12x12 room for 21 days is no small thing. Even having internet access didn't help too much. More often than not I was too tired to type. All my energy going on coping in my cell and trying to keep these failing legs going as much as possible.
It's not been pretty!
My poor Mum having to things for me that she hasn't had to do since I was a baby.
I engrafted on Monday. This means that my baby stem cells had found the correct place and started to form my new immune system.
I think days +1 to +6 following my transplant were the absolute worst for me. Diarrhoea, vomiting, nausea and no appetite. Hardly any food passed my lips for 3 weeks. That's some achievement for me!
I always knew that it wasn't going to be an easy ride in BMT (bone marrow transplant). Others who have been before me were gracious enough to tell their stories and I took it all on board. I'm forever grateful for them putting up with my no doubt inane questions!
I'm going to beg to be allowed back to the Hotel today. Paul's here now! I'm waiting for him to get over here to the hospital. It's so good knowing he's close by. Despite not being here physically, emotionally he's supported me every step of the way. It's so hard when the other half of you is a ten hour flight away, but he's here now and recovery will be a lot better for it.
I've been quite focussed through this whole thing. Not really leaving much room for feeling emotional. On the day I left home I cried all the way to the airport. Already missing Paul and the kids so I made a conscious decision to see HSCT a job to be done. Concentrate on it completely and not be side tracked.
But, there were a couple of moments where the tears came...
The first was following day 0. The day I got my stem cells back. It finally dawned on me that if this has worked the way it should I be MS free! How massive is that? The possibilities are endless. Who knows?
I'm not expecting to ever walk again, not in any meaningful way but if it's stopped that's amazing and I'll take that with both hands, thank you very much..
The other was yesterday, after Dr Amit had left after saying he's happy. I'm released!
On my own in the room, picture flashes up of the kids. One little tear, two little tears and now I'm actually crying a bloody river!
My Mum comes back. Those of you that know her will know that it doesn't take much for my Mum to start crying.
It's such an amazing feeling. We've done it! I'm missing the kids so much but home is really in sight.
I'm sitting there saying I've just had a Bone Marrow Transplant in India! How bloody crazy is that!
The relief is immense..
I'm so grateful to my Mum. She's been totally with me all the way and despite when I first mentioned wanting to have HSCT lots of people thinking it'd never be achieved, she's been there.
Thanks Mum!! She's off home tomorrow. I'll genuinely miss her. we've had a couple of close calls over the last 6 weeks being so 'with' each other, but basically we've been great.
I'm off, the nurses are in cracking the whip for me to get in the shower. Have to make myself pretty for Paul, haha. No chance of that at the moment. I still have hair on my head! Only a little but it's hanging on.
I'll have to see if I can 'do' something with it..
Last night I was let out of isolation and back on the ward.
The first thing we did when we got in to that room was throw open the window and take some really deep breaths. It felt so good to be free!
Over the last few days I've really noticed how down I was getting. Being confined to a 12x12 room for 21 days is no small thing. Even having internet access didn't help too much. More often than not I was too tired to type. All my energy going on coping in my cell and trying to keep these failing legs going as much as possible.
It's not been pretty!
My poor Mum having to things for me that she hasn't had to do since I was a baby.
I engrafted on Monday. This means that my baby stem cells had found the correct place and started to form my new immune system.
I think days +1 to +6 following my transplant were the absolute worst for me. Diarrhoea, vomiting, nausea and no appetite. Hardly any food passed my lips for 3 weeks. That's some achievement for me!
I always knew that it wasn't going to be an easy ride in BMT (bone marrow transplant). Others who have been before me were gracious enough to tell their stories and I took it all on board. I'm forever grateful for them putting up with my no doubt inane questions!
I'm going to beg to be allowed back to the Hotel today. Paul's here now! I'm waiting for him to get over here to the hospital. It's so good knowing he's close by. Despite not being here physically, emotionally he's supported me every step of the way. It's so hard when the other half of you is a ten hour flight away, but he's here now and recovery will be a lot better for it.
I've been quite focussed through this whole thing. Not really leaving much room for feeling emotional. On the day I left home I cried all the way to the airport. Already missing Paul and the kids so I made a conscious decision to see HSCT a job to be done. Concentrate on it completely and not be side tracked.
But, there were a couple of moments where the tears came...
The first was following day 0. The day I got my stem cells back. It finally dawned on me that if this has worked the way it should I be MS free! How massive is that? The possibilities are endless. Who knows?
I'm not expecting to ever walk again, not in any meaningful way but if it's stopped that's amazing and I'll take that with both hands, thank you very much..
The other was yesterday, after Dr Amit had left after saying he's happy. I'm released!
On my own in the room, picture flashes up of the kids. One little tear, two little tears and now I'm actually crying a bloody river!
My Mum comes back. Those of you that know her will know that it doesn't take much for my Mum to start crying.
It's such an amazing feeling. We've done it! I'm missing the kids so much but home is really in sight.
I'm sitting there saying I've just had a Bone Marrow Transplant in India! How bloody crazy is that!
The relief is immense..
I'm so grateful to my Mum. She's been totally with me all the way and despite when I first mentioned wanting to have HSCT lots of people thinking it'd never be achieved, she's been there.
Thanks Mum!! She's off home tomorrow. I'll genuinely miss her. we've had a couple of close calls over the last 6 weeks being so 'with' each other, but basically we've been great.
I'm off, the nurses are in cracking the whip for me to get in the shower. Have to make myself pretty for Paul, haha. No chance of that at the moment. I still have hair on my head! Only a little but it's hanging on.
I'll have to see if I can 'do' something with it..
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